When to Disclose, When to Smile and Nod

The backstory

When Little Green was just four months old, I left my full-time job to be a stay at home/freelancing mom.

It seemed like the right thing to do at the time – I was pumping at work (in a “library” room without a door) and she wasn’t really taking well to the bottle, my husband was her full-time caregiver and wasn’t happy and also couldn’t get his own work done, and I was just really wanting to be home with my baby.

Then she started missing milestones, got a diagnosis of cerebral palsy, and changed my entire path.

But you know this, probably, by reading my blog. It’s the story I tell often.

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An Interview with Little Green – January 2017

This is going around Facebook but I wanted to post it here to give some insight into Little Green.

(Plus, I’m cheating a little. I wanted to post something after fucking posting nothing for too long. I’ll be back on track soon.)

WITHOUT prompting, ask your child these questions and write EXACTLY what they say about you…

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Good Night, Sleep Tight – Bedtime at the Greens

Supermoon

What’s bedtime like at your house with your six, seven, eight, nine year old? I bet it’s nothing like mine, and I really don’t want you to silence me by telling me that you understand because your two year old was similar.

I’ve been living with a kid who doesn’t sleep through the night for over nine years now, and I don’t see it changing any time soon.

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This Time of Year Freaks Me Out: Health Insurance & the Medicaid Waiver

The Fall Light

Warning: Contains lots and lots of words, and some of those words are of an adult nature. Fuck yeah.

October, November, and December. The end of the year should be for celebration and fun and riding the wave to the new year. Halloween! My birthday! Thanksgiving! Hanukkah! New Year’s Eve! Driving around to see the decorated front yards and then the pretty lights (until Little Green screams that she wants to go home). The weather getting a bit cooler. These are all very nice, very happy things. I do like this time of year.

Alas. This time of the year now has a big greasy gray cloud hanging over it, and it’s always whispering doom messages in my ear.

For the past six or so years, the last few months of the year have brought super extra stress – and I’m not talking about the “what presents do I buy the family?” stress.

I’m talking about the fun and excitement (not fucking at all) of both open enrollment for regular old health insurance and renewal of Little Green’s Medicaid waiver.

Both. Suck. Ass.

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